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    THE ROGER’S

    Sarah was another beautiful mama that I connected with at a local support group. We clicked instantly. She is one of those bubbly, warm people that you can’t help but want to be around.  She is driven, full of light and exudes positivity. She is a passionate advocate for her son Ollie as is her husband Gary and her precious daughter Calla. This family oozes energy and their loyalty, passion and love for one another is so evident and so incredibly heart warming.  Enjoy reading the Rogers’ journey – it is full to the brim of strength, full of love and full of a whole heap of faith. XXX  …

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    THE REES’

    Nix and I met through a support group in our area. We also share a pretty special mutual friend.  Nix has been my “go to girl” for absolutely any question with regards to Down Syndrome. She is our google.  She is well read, well educated and is the fundi when it comes to Makaton sign language. She is fiercely loyal, fiercely determined and fiercely loving of her two precious boys.  She also happens to be the most phenomenal mother to her two sons.  Nix’s account of her journey is honest, frank and heartwarming, and her son Zac is one of the most handsome young men I have ever seen. XXX…

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    THE DOMLEO’S

    Roxy and I go way back – all the way back to 2002 when she was my hockey coach at school. We also attended the same university, although not at the same time, and she was a friend of my big brother. When I received a message from Rox when she was pregnant with her first child saying that they had received a positive result for Down Syndrome my heart quite literally plummeted. Our motherhood paths have been almost identical and knowing that she was going through the same feelings of loss, guilt and fear meant that my heart broke. I couldn’t wait for her to slowly comes to terms…

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    THE BRENT’S

    Cara was the very first parent with a child born with Down Syndrome that I met after I had had Luke. She came to visit with a teddy bear and a beautiful bunch of yellow roses. I remember thinking, she is so lovely and so normal! It is so weird how our brain operates in those early blurry days.  I then met her husband Verster at a parents support group and I remember thinking this man is so wise and speaks such truths. It is this combination of honesty, passion, loyalty and love that make the Brent’s the kind of family that you want to be around, and often. Their…

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    #JUSTLIKEUSKIDS

      When Jon and I found out that Luke would be born with Down Syndrome we made a pact. That pact was to never be embarrassed about our son. We promised to one another that we would CELEBRATE Luke always, that we would EMBRACE who he was and that we would shout at the top of our lungs to the world just how PROUD we are that we get to call Luke ours. It was a silly pact and looking back one in which in we never have had to revisit and remind ourselves of. It just happens. We are just THAT proud of who we have created. I had…

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    MOM GUILT

    I think out of everything that I was warned about prior to becoming a mother, guilt was an emotion that I never really fully grasped. As a mother, guilt is your constant companion. It cloaks you like a well worn jacket and is constantly at the back of your mind.  I, as a mother of two find this emotion to often be overwhelming and all consuming.  I leave my babies each and every day to travel an hour into work and an hour back home everyday. My workplace is not close to home and I work a 9 – 5 job. The guilt of having to leave, of leaving my…

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    LET’S TALK ABOUT COLIC

    I’m sure you have heard the saying that you are given an easy first child for a very specific reason. The reason is to lull you into a false sense of security, to programme your brain into thinking that parenting is a walk in the park and for you as a result to procreate once more.  We were blessed with an incredibly easy first child. Luke slept through from 2 months old. I can count on my hand the number of times he cried, really cried. He transitioned from breast milk, to formula to cow’s milk with zero fuss and his solid starting journey was a breeze. I think Luke…

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    A LETTER TO OUR TWO YEAR OLD SON

    Dearest Luke What a year it has been. A year which has seen a massive shift in the political landscape of our country, where South Africans hearts have been filled with hope, a year in which Steinhoff, Oakbay and KPMG were taken to task, and a year in which Prince Harry finally grazed his knee.  For you this year has meant incredible milestones have been accomplished.  You have learned to sign. Our efforts in practicing Makaton signing have paid off and seeing you sign please, thank you, sorry, bed and bird have filled our hearts with joy and have proven beyond measure just how bright you are.  You have learnt…

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    IT’S TOUGH

      On Saturday I had three other mums with children born with Down Syndrome around for lunch. It’s main reason was to brain storm a collaboration that we have in store for October, Down Syndrome Awareness Month. Yes we did hash out some ideas, and yes we did drink some champagne and yes we did share a meal. But more than that we off loaded. Like an alcoholic finding solace at an AA meeting or an artist getting her fix at an art gallery, I always find these meet ups cathartic. There is something healing about being able to be completely honest with people who know. People who get it,…

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    EAST COAST RADIO FEATURE

    We have been so inspired and our hearts have been filled to the brim with the amount of awareness that has been spread around the world for World Down Syndrome Day. Below is a an extract from a feature on the Carpool Karaoke video that was aired on our local radio station. Click on the play button at the end of the text to have a listen to my voice note. xxxx https://www.ecr.co.za/shows/jane-linley-thomas-show/watch-50-moms-create-emotional-carpool-karaoke-video-down-syndrome-children/